Measuring dependency in adults with disabilities: a literature review

Authors

DOI:

https://doi.org/10.29076/issn.2602-8360vol6iss11.2022pp15-29p

Keywords:

activities of Daily Living, adult, need for help, people with disabilities

Abstract

The aim of this literature review is to identify quantitative methodologies used for the measurement of dependence in adults with disabilities. The analysis of the findings of the bibliographic search (N=431) was carried out according to the PRISMA stages of systematic review.  The inclusion criteria were books or articles published in peer reviewed journals between 2010-2020 in English, Spanish or Portuguese, the study participants between 18 and 64 years of age and participants not institutionalized. Six studies were selected for the extraction stage from which we analyze the characteristics of the populations studied, dependency measurement tools, definitions of disability and dependency used, reported results and limitations of the studies stated by the authors. In all the studies considered the measurement of dependency is used as an independent variable. Also, there are a variety of terms to refer to dependency, generating confusion and at times erroneous results. The contribution of this article may be of interest to improve the training of human resources working with people with disabilities and those who make decisions regarding services and policies that have an impact on the quality of life of people with disabilities.

Downloads

Download data is not yet available.

References

Mont, D., Loeb, M. Beyond DALYs: Developing Indicators to Assess the Impact of Public Health Interventions on the Lives of People with Disabilities. The World Bank; 2008.

Mitra, S. (2018). Disability, Health and Human Development. Estados Unidos: Palgrave Macmillan US; 2018.

Organización Mundial de la Salud (2001) Clasificación Internacional del Funcionamiento, la Salud y la Discapacidad (CIF). Ginebra: WHO Press; 2001

Querejeta Gonzalez, M. A. Discapacidad/Dependencia. Unificación de criterios de valoración y clasificación. España: IMSERSO; 2009,

Paiva, S. C. L., Gomes, C. P., de Almeida, L. G., Dutra, R. R., Aguiar, N. P., Lucinda, L. M. A influência das comorbidades, do uso de medicamentos e da institucionalização na capacidade funcional dos idosos. Revista interdisciplinar de estudos experimentais, 2014 (impr.); 6: 46-53.

Bagnato, M., Falero, B.,Larrosa, D., Correa, J., Hontou, C. y Barbosa, E. Cuidado y calidad de vida de madres de hijos/as con discapacidad psíquica y dependencia severa. X Jornadas Científicas Internacionales de Investigación sobre Personas con Discapacidad, 2018.

Nouwens P.J.G., Smulders, N. B. M., Embregts, P. J. C. M., Nieuwenhuizen, C. Meeting the support needs of persons with mild intellectual disability or borderline intellectual functioning: still a long way to go. Journal of Intellectual Disability Research, 2017; 61(12): 1104–16.

Roulstone, A. (2015) Personal Independence Payments, welfare reform and the shrinking disability category. Disability & Society, 2015; 30(5): 673-688.

Peñas-Felizzola, O. L. Referentes conceptuales para la comprensión de la discapacidad. Revista de la Facultad de Medicina, 2013; 61(2): 205-212.

Albarrán Lozano, I., Gonzalez, A., Bolancé Losillas, C. Comparación de los baremos español, francés y alemán para medir la dependencia de las personas con discapacidad y sus prestaciones. Revista Española de Salud Pública, 2009; 83(3): 279-292.

Palacios, A. (2008) El modelo social de discapacidad: orígenes, caracterización y plasmación en la Convención Internacional sobre los Derechos de las Personas con Discapacidad. Ed. CERMI, 2008.

Organización de Naciones Unidas. Washington Group on Disability Statistics. An Introduction to the Washington Group on Disability Statistics Question Sets. Estados Unidos: ONU, 2020.

Arnold, C.K., Heller, T. Caregiving Experiences and Outcomes: Wellness of Adult Siblings of People with Intellectual Disabilities. Current Developmental Disorders Reports, 2018; 5: 143–149.

Williamson, H. J., Perkins, E. A. Family caregivers of adults with intellectual and developmental disabilities: outcomes associated with U.S. services and supports. Intellectual and developmental disabilities, 2014; 52(2): 147–159.

Tamayo M, Besoaín Á, Rebolledo J. Determinantes sociales de la salud y discapacidad: actualizando el modelo de determinación. Gaceta Sanitaria, 2018; 32(1), 96–100.

Organización de Naciones Unidas. Convention on the Rights of Persons with Disabilities. Ginebra: ONU, 2006.

Organización de Naciones Unidas (2015) Sustainable Development Goals. Ginebra: ONU, 2015.

UNFPA (2019) Regional strategy proposed to promote the rights of persons with disabilities (2019-2021).

Urrútia, G., Bonfill, X. Declaración PRISMA: Una propuesta para mejorar la publicación de revisiones sistemáticas y metaanálisis. Medicina Clínica, 2010; 135(11): 507-511.

Pautasso, M. Ten Simple Rules for Writing a Literature Review. PLOS Computational Biology, 2013; 9(7), e1003149.

Amezcua, Manuel. Cómo estructurar un Trabajo Académico en la modalidad de Revisión de la Literatura. Gomeres [Internet], 2015.

Pejić-Bach, M., & Cerpa, N.. Planning, Conducting and Communicating Systematic Literature Reviews. Journal of theoretical and applied electronic commerce research. 2019; 14(3): i-iv.

Harvey, C., Brophy, L., Parsons, S., Moeller-Saxone, K., Grigg, M., Siskind, D. People living with psychosocial disability: Rehabilitation and recovery-informed service provision within the second Australian national survey of psychosis. Australian & New Zealand Journal of Psychiatry, 2016; 50(6): 534-547.

Palmcrantz, S. M., Holmqvist, L. W., & Sommerfeld, D. K. Young individuals with stroke: a cross sectional study of long-term disability associated with self-rated global health. BMC Neurology, 2014; 14(20): 1-7.

Palmcrantz, S. M., Holmqvist, L. W., & Sommerfeld, D. K. Long-term health states relevant to young persons with stroke living in the community in southern Stockholm - a study of self-rated disability and predicting factors. Disability & Rehabilitation, 2012; 34(10): 817-82.

Gulley, S. P., Rasch, E. K., Chan, L. (2011) The Complex Web of Health: Relationships among Chronic Conditions, Disability, and Health Services. Public Health Reports, 2011; 126(4): 495-507.

Morgan, V., Waterreus, A., Jablensky, A., Mackinnon, A., McGrath, J., Carr, V., et al. People living with psychotic illness in 2010: the second Australian national survey of psychosis. Australian & New Zealand Journal of Psychiatry, 2012; 46(8): 534-547

Precilios, H., Brunani, A., Cimolin, V., Tacchini, E., Donini, L. M., Fabris De Souza, S., Capodaglio, P. Measuring changes after multidisciplinary rehabilitation of obese individuals. Journal of Endocrinological Investigation, 2013; 36, 72–77.

Palmcrantz, S. M., Holmqvist, L. W., & Sommerfeld, D. K. Development, validity and reliability of a postal questionnaire assessing health states relevant to young persons with stroke in Sweden. Disability and rehabilitation, 2011; 33(13-14), 1179–1185.

Paolinelli, C., González, P., Doniez, M. E., Donoso, T., Salinas, V. (2001). Instrumento de evaluación funcional de la discapacidad en rehabilitación.: Estudio de confiabilidad y experiencia clínica con el uso del Functional Independence Measure. Revista médica de Chile, 2001; 129(1): 23-31.

Jaeger, J., Berns, S. M., & Czobor, P. (2003). The Multidimensional Scale of Independent Functioning: A New Instrument for Measuring Functional Disability in Psychiatric Populations. Schizophrenia Bulletin, 2003; 29(1): 153–168

Pantano, L. La medición de la discapacidad en Latinoamérica: Los marcos conceptuales de preguntas censales. Lecciones de algunas experiencias. Seminario sobre aproximación cuantitativa a las discapacidades. España; 2003.

Esparza Catalán, C. Métodos de cálculo de la gravedad de la discapacidad. Madrid, Informes Portal Mayores, 2010; 103.

González Castillo, J. A., Rebollo Rubio, A., Cabrera Azaña, S., Mansilla Francisco, J. J., Sánchez García, B., Granados Camacho, S. A. Grado de discapacidad en personas que inician terapia sustitutiva renal. Enfermería Nefrológica, 2014; 17(1), 21.

Barbaglia, G., Adroher, N. D., Vilagut, G., Bruffaerts, R., Bunting, B., Caldas de Almeida, J. M., et al. Health conditions and role limitation in three European Regions: a public-health perspective. Gaceta Sanitaria, 2017; 31(1): 2-10.

Páez-Pineda OD, Gualdrón-Solano EL, Melo-Guarín AR, Ortiz-Calderón MV. Caracterización de discapacidad en pacientes con traumatismos de la médula espinal usando WHODAS 2.0 [Characterisation of disability in spinal cord injury patients using WHODAS 2.0]. Atención Familiar, 2021; 28(2): 89-94.

Rodríguez-González, A. M., Rodríguez-Míguez, E. (2021) La medición de la dependencia a partir del tiempo de cuidado y del baremo de valoración de dependencia. Revista Española de Geriatría y Gerontología, 2021; 56(1): 35-40.

Estrada Fernández, M. E., Gil Lacruz, A. I., Gil Lacruz, M., Viñas López, A. La dependencia: efectos en la salud familiar [Dependency: effects on family health]. Atención Primaria, 2018; 50(1): 23-34

Salvador-Carulla, L., Gasca, V. I. Defining disability, functioning, autonomy and dependency in person-centered medicine and integrated care. International Journal of Integrated Care, 2010; 10: 69-72.

Loubat O., M., Lobos, R., & Carrasco, N. Estigmatización de la persona con esquizofrenia y consecuencias para el proceso de rehabilitación. LÍMITE Revista Interdisciplinaria De Filosofía Y Psicología, 2017; 12(39): 15-25.

Dassel, K. B., & Schmitt, F. A. The impact of caregiver executive skills on reports of patient functioning. The Gerontologist, 2008; 48(6): 781–792.

Ayalon, L., Lev, S., Rotstein, A. Who Will Take Care of Me? Perceptions and Expectations of Future Long-Term Care Needs Among Middle-Aged and Older Israelis. Seniors Housing & Care Journal, 2014; 22(1): 43-58.

Genet, N., Boerma, W.G., Kringos, D.S., Francke, A., Fagerström, C., Melchiorr, M. G., Greco, C., Devillé, W. Home care in Europe: a systematic literature review. BMC Health Services Research, 2011; 11(207): 1-14.

Published

2022-12-07

How to Cite

Measuring dependency in adults with disabilities: a literature review. (2022). FACSALUD-UNEMI, 6(11), 15-29. https://doi.org/10.29076/issn.2602-8360vol6iss11.2022pp15-29p