SYSTEMATIC REVIEW OF COPING STRATEGIES IN MAIN CAREGIVERS OF PEOPLE WITH DEMENTIA
Abstract
Abstract: Coping strategies are a series of thoughts and actions that allow the individual to handle difficult situations where cognitive, emotional and behavioral processes are involved. This systematic review study analyzes coping strategies in primary caregivers of people diagnosed with dementia. Using the PRISMA-NMA methodology, 24 articles were selected from the PubMed, bvsalud, SciELO, Redalyc and DIALNET databases, with a total of 3726 caregivers evaluated. The results show that the use of emotionally oriented coping strategies predominates, such as the search for social support and religion/spirituality, which are associated with a reduction in depression and burden, as well as better mental health, physical health, quality of life and psychological well-being. It is concluded on the need to plan interventions, focused on training adaptive strategies, emotionally oriented with the aim of regulating the emotions associated with the stressful situation, and avoiding passive or avoidant coping.Downloads
References
REFERENCIAS
Alltag, S., Conrad, I., & Riedel-Heller, S. G. (2019). Caregiver burden among older informal caregivers of patients with dementia and its influence on quality of life: A systematic literature review. Zeitschrift fur Gerontologie und Geriatrie, 52(5), 477–486. https://bit.ly/3wZwqSi
Asociación Americana de Psiquiatría (2013). Manual Diagnóstico y Estadístico de los Trastornos Mentales (DSM-5) . 5ª ed. Asociación Americana de Psiquiatría.
*Baharudin, A.D., Din, N.C., Subramaniam, P. & Razali, R. (2019). The associations between behavioral-psychological symptoms of dementia (BPSD) and coping strategy, burden of care and personality style among low-income caregivers of patients with dementia. BMC Public Health, 19(4), 447. https://bit.ly/3wY0td5
*Balbim, G.M., Marques, I.G., Cortez, C., Magallanes, M., Rocha, J. & Marquez, D.X. (2019). Coping Strategies Utilized by Middle-Aged and Older Latino Caregivers of Loved Ones with Alzheimer's Disease and Related Dementia. Journal of cross-cultural gerontology, 34(4),355-371. https://bit.ly/38j6Ddv
*Basnyat, I. & Chang, L. (2017). Examining Live-In Foreign Domestic Helpers as a Coping Resource for Family Caregivers of People With Dementia in Singapore. Health Communication, 32(9),1171-1179. https://bit.ly/3K85CD8
Caga, J., Kiernan, M.C. & Piguet, O. A. (2021). Systematic Review of Caregiver Coping Strategies in Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Journal geriatric psychiatry and neurology, 8919887211060016. https://bit.ly/3u4yDdy
Cano, F. J., Rodríguez Franco, L. y García Martínez, J. (2007). Adaptación española del Inventario de Estrategias de Afrontamiento. Actas Españolas de Psiquiatría, 35, 29-39.
Carver, C. S., Scheier, M. F. & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267-283.
Endler, N. S. & Parker, J. D. A. (1990). Multidimensional assessment of coping: A critical evaluation. Journal of Personality and Social Psychology, 58, 844-854.
Etcheverry Domeño, L. (2018) Temperamento y carácter como factores asociados a sobrecarga en cuidadores principales de pacientes con diagnóstico de demencia. Tesis sin publicar.
Farina, N., Page, TE, Daley, S., Brown, A., Bowling, A., Basset, T., Livingston, G., Knapp, M., Murray, J. y Banerjee, S. (2017 ), Factores asociados a la calidad de vida de los cuidadores familiares de personas con demencia: Una revisión sistemática. Alzheimer's & Dementia, 13: 572-581. https://bit.ly/36SWMuH
*Fields, N.L., Xu, L. & Miller, V.J. (2019). Caregiver Burden and Desire for Institutional Placement-The Roles of Positive Aspects of Caregiving and Religious Coping. American Journalof Alzheimer´s Disease and other Dementias, 34(3),199-207. https://bit.ly/3uPJAPa
GBD 2019 Dementia Forecasting Collaborators (2022). Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019. The Lancet. Public health, 7(2), e105–e125. https://bit.ly/3LIjrsx
Gilhooly, K. J., Gilhooly, M. L., Sullivan, M. P., McIntyre, A., Wilson, L., Harding, E., Woodbridge, R., & Crutch, S. (2016). A meta-review of stress, coping and interventions in dementia and dementia caregiving. BMC geriatrics, 16, 106. https://bit.ly/38f0qzi
*Guerrero, L.R. & Mendez-Luck, C.A. (2019). Overcoming a Bad Day: a Qualitative Look into the Dementia Caregiving Experiences of Mexican-Origin Women in East Los Angeles. Journal of cross-cultural gerontology, 34(4),373-384. https://bit.ly/3u2EKPf
*Haverstock, N.B., Ruthig, J.C. & Chipperfield, J.G. (2020). Primary and secondary control strategies and psychological well-being among familial caregivers of older adults with dementia. The Journal of social Psychology, 160(1),61-74. https://bit.ly/3LFgfhm
*Huertas-Domingo, C., Márquez-González, M., Cabrera, I., Barrera-Caballero, S., Pedroso-Chaparro, M.D.S., Romero-Moreno, R. & Losada-Baltar, A. (2021). Sociocultural Influences on the Feeling of Loneliness of Family Caregivers of People with Dementia: The Role of Kinship. International Journal of enviromental research and public health, 18(9),4700. https://bit.ly/3LDd3CD
Hutton, B., Catalá-López, F., & Moher, D. (2016). The PRISMA statement extension for systematic reviews incorporating network meta-analysis: PRISMA-NMA. Medicina clinica, 147(6), 262–266. https://bit.ly/3LBCC7c
Internacional de la enfermedad de Alzheimer (año). Informe Mundial sobre el Alzheimer 2019: Actitudes hacia la demencia 2019. https://www.alzint.org/u/WorldAlzheimerReport2019.pdf
Kazemi, A., Azimian, J., Mafi, M., Allen, K. A., & Motalebi, S. A. (2021). Caregiver burden and coping strategies in caregivers of older patients with stroke. BMC psychology, 9(1), 51. https://bit.ly/3NHU383
*Lau, B.H. & Cheng, C. (2017). Gratitude and coping among familial caregivers of persons with dementia. Aging & ment health, 21(4),445-453. https://bit.ly/3x1aiqI
Lauritzen, J., Pedersen, P. U., Sørensen, E. E., & Bjerrum, M. B. (2015). The meaningfulness of participating in support groups for informal caregivers of older adults with dementia: a systematic review. JBI database of systematic reviews and implementation reports, 13(6), 373–433. https://bit.ly/3uRM0wH
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. Springer.
*León Campos, M. O., Slachevsky, A. C. y Miranda Castillo, C. (2018). Afrontamiento, apoyo social y depresión en cuidadores informales y su relación con necesidades no cubiertas de personas con demencia. Ansiedad y estrés, 24 (2), 73-80. https://bit.ly/3qZk09v
Li, R., Cooper, C., Austin, A. & Livingston, G. (2013). Do changes in coping style explain the effectiveness of interventions for psychological morbidity in family carers of people with dementia? A systematic review and meta-analysis. International Psychogeriatrics, 25(2),204-14. https://bit.ly/3wYJNSX
Li, R., Cooper, C., Bradley, J., Shulman, A. & Livingston, G. (2012). Coping strategies and psychological morbidity in family carers of people with dementia: a systematic review and meta-analysis. Journal of affective disorders, 139(1), 1–11. https://bit.ly/3u6nEQR
*Lloyd, J., Muers, J., Patterson, T.G. & Marczak, M. (2019). Self-Compassion, Coping Strategies, and Caregiver Burden in Caregivers of People with Dementia. Clinical gerontologist, 42(1),47-59. https://bit.ly/3NKHusI
Medical Advisory Secretariat (2008). Caregiver- and patient-directed interventions for dementia: an evidence-based analysis. Ontario health technology assessment series, 8(4), 1–98.
*Melo, G., Maroco, J., Lima-Basto, M. & de Mendonça, A. (2017). Personality of the caregiver influences the use of strategies to deal with the behavior of persons with dementia. Geriatric nursing, 38(1),63-69. https://bit.ly/3KaR9q8
Monteiro, A., Santos, R.L., Kimura, N., Baptista, M. & Dourado, M. (2018). Coping strategies among caregivers of people with Alzheimer disease: a systematic review. Trends in psychiatry and psychotherapy, 40(3),258-268. https://bit.ly/3K6uEmh
Morán, C., Landero, R. & González, M.T. (2009). COPE-28: un análisis psicométrico de la versión en español del Brief COPE. Universitas Psychologica, 9(2), 543-552.
*Morimoto, H., Furuta, N., Kono, M. & Kabeya, M. (2019). Stress-buffering Effect of Coping Strategies on Interrole Conflict among Family Caregivers of People with Dementia. Clinical gerontologist, 42(1),34-46. https://bit.ly/3NVJUEW
*Myhre, J., Bjørnstad, Tonga. J., Ulstein, I.D., Høye, S. & Kvaal, K. (2018). The coping experiences of spouses of persons with dementia. Journal of clinic nursing, 27,3-4 :e495-e502. https://bit.ly/3J5UIwg
Nolan, M., Keady, J. & Grant, G. (1995). Desarrollo de una tipología de cuidado familiar: implicaciones para las enfermeras y otros proveedores de servicios. Diario de Enfermería Avanzada, 21 (2), 256-265.
Polenick, C.A., Struble, L.M., Stanislawski, B., Turnwald, M., Broderick, B., Gitlin, L.N. & Kales, H.C. (2020) "I've learned to just go with the flow": Family caregivers' strategies for managing behavioral and psychological symptoms of dementia. Dementia, 19(3),590-605. https://bit.ly/3DyScha
*Robinson-Lane, S.G., Zhang, X. & Patel, A. (2021). Coping and adaptation to dementia family caregiving: A pilot study. Afrontamiento y adaptación al cuidado familiar de la demencia: un estudio piloto. Geriatric Nursing, 42(1), 256-261. https://bit.ly/3r1DPNf
Roche, L., MacCann, C. y Croot, K. (2016). Factores predictivos para la adopción de estrategias de afrontamiento por cuidadores conyugales de demencia: una revisión sistemática. Enfermedad de Alzheimer y trastornos asociados, 30 (1), 80–91. https://bit.ly/3KaR9q8
*Rodríguez, A. & Pérez, L. (2019). Estrategias de afrontamiento en cuidadoras de personas con alzhéimer. Influencia de variables personales y situacionales. Revista Española de Discapacidad, 7 (I), 153-171. https://bit.ly/37by1cW
*Rodríguez-Pérez, M., Abreu-Sánchez, A., Rojas-Ocaña, M.J. & Del-Pino-Casado, R. (2017). Coping strategies and quality of life in caregivers of dependent elderly relatives. Health and quality life outcomes, 15(1),71. https://bit.ly/376B1r3
Roig, M. V., Abengózar Torres, M. C., & Serra Desfilis, E. (1998). La sobrecarga en los cuidadores principales de enfermos de alzheimer. Annals of Psychology, 14(2), 215–227. https://revistas.um.es/analesps/article/view/31561
*Saffari, M., Koenig, H. G., O'Garo, K. N., & Pakpour, A. H. (2018). Mediating effect of spiritual coping strategies and family stigma stress on caregiving burden and mental health in caregivers of persons with dementia. Dementia, 1471301218798082. Advance online publication. https://bit.ly/3K63ImJ
Schulz, R., Beach, S. R., Czaja, S. J., Martire, L. M., & Monin, J. K. (2020). Family Caregiving for Older Adults. Annual review of psychology, 71, 635–659. https://bit.ly/37bVavK
Tokovska, M., Nour, M. M., Sørensen, A., & Småland Goth, U. (2021). Informal caregivers and psychosocial support: Analysis of European Dementia Policy documents. Journal of public health research, 11(1), 2416. https://bit.ly/3x1LTl2
Toot, S., Swinson, T., Devine, M., Challis, D., & Orrell, M. (2017). Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis. International psychogeriatrics, 29(2), 195–208. https://bit.ly/3wZFCWO
*Tretteteig, S., Vatne, S. & Rokstad, A. (2017). Meaning in family caregiving for people with dementia: a narrative study about relationships, values, and motivation, and how day care influences these factors. Journal of multidisciplinary healthcare, 10,445-455. https://bit.ly/3iYPnMX
*Turró-Garriga, O., Conde-Sala, J.L., Viñas, V., Turon-Estrada, A., Cullell-Juncà, M., Calvó-Perxas, L., Juvinyà-Canal, D., Mioshi, E. & Garre-Olmo, J. (2020). Antonovsky's sense of coherence and resistance resources reduce perception of burden in family carers of people with Alzheimer's disease. Aging & mental health, 24(10),1717-1725. https://bit.ly/38ryb0z
*van Knippenberg, R.J.M., de Vugt, M.E., Ponds, R.W., Verhey, F.R.J. & Myin-Germeys, I. (2018). Emotional reactivity to daily life stress in spousal caregivers of people with dementia: An experience sampling study. PLoS One, 13(4) e0194118. https://bit.ly/38ryh8r
*Xiuxiang, Z., Zhang, X. & Hockley, J. (2020). A qualitative study of family caregivers' coping strategies of looking after people with dementia in China. Journal of research in nursing:JNS, 25(8), 636-649. https://bit.ly/3DFgXZc
*Yuan, Q., Wang, P., Tan, T.H., Devi, F., Poremski, D., Magadi, H., Goveas, R., Ng, LL., Chong, S.A. & Subramaniam, M. (2021). Coping Patterns Among Primary Informal Dementia Caregivers in Singapore and Its Impact on Caregivers-Implications of a Latent Class Analysis. The Gerontologist, 61(5),680-692. https://bit.ly/3DzqRvk
*Zauszniewski, J.A., Lekhak, N. & Musil, C.M. (2018). Caregiver Reactions to Dementia Symptoms: Effects on Coping Repertoire and Mental Health. Issues in mental health nursing, 39(5),382-387. https://bit.ly/3uRQ6VB
Copyright (c) 2022 PSICOLOGÍA UNEMI
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Esta obra está bajo licencia internacional Creative Commons Reconocimiento-NoComercial-SinObrasDerivadas 4.0.
Todos los artículos de la Revista FACSalud UNEMI son difundidos bajo licencia internacional Creative Commons Reconocimiento-NoComercial-SinObrasDerivadas 4.0.
Los autores mantienen los derechos de autor, y, por lo tanto, son libres de compartir, copiar, distribuir, ejecutar y comunicar públicamente la obra bajo las condiciones siguientes: Reconocer los créditos de la obra especificada por el autor e indicar si se realizaron cambios (puede hacerlo de cualquier forma razonable, pero no de una manera que sugiera que el autor respalda el uso que hace de su obra. No utilizar la obra para fines comerciales. En caso de remezcla, transformación o desarrollo, no puede distribuirse el material modificado.
